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Saturday, January 14, 2012

Mito Vocabulary

The hardest part of getting thrown into the Mito world besides worrying about my daughters, is the endless list of new vocabulary- it is like an instant immersion class into a foreign language!!1

So, while I have my coffee I am going to list all the new words I know I have conquered this year;

Mitochondrial Disease
Mitochondrial Depletion Syndrome
mtDNA
nDNA
metabolic specialist
muscle biopsy
PICC line
SCAD
buccal swab(not nearly as awful as it sounds!!!)
J-tube
G-tube
TPN
MRS
Mito Cocktail
CPK
Rhabdomyolysis
homoplasmic
hetroplasmic
respiratory complex(!,2,3,4,5)
hypertensive lower esophageal sphincter
gastroparesis
mutation
Mitochondrial toxic
dysautonomia
Autonomic
Leighs
LHON
Alpers
hypotonia
cyclic vomiting
eosinophilic esophagitis
myopathy
PVC's
spoon theory..
tubie(patient with tube for feeding-)
Mitovian(the citizens of the world of Mito)
So I could go on and on but these were the ones that popped up when I made my poor brain think about it. Do not ask me to pronounce any of them though!! LOL

So, the world of Mito is very overwhelming. The first couple posts you make to a support group feel almost like diving off a cliff, after a year or two you start picking up all the vocabulary and before you know it, you will start using it too!

Depending on the "type" of mito you have, your vocabulary could be very very different.. but since we all hang out together it is helpful to learn as much as you can! It would be like having a deaf child and the whole family signs, but Grandma and Grandpa refuse to learn- so when they come over to visit they really cannot communicate well with their grandchild..

Alright- you all escape too much chatting from me- busy day today!



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