WARNING: the foods we cook for Abby are safe for her, but not necessarily for everyone. Please confirm any ingredients are safe for you before using in your diet. Food Allergies can kill and the best policy is complete avoidance. Read this post for more info.

Friday, June 1, 2012

Allergy Attack





Abby ate some frozen banana ice cream(just banana,you freeze and puree the banana) with PB2- within 30 minutes became violently ill.

Headache,nausea,wheezing, drop in BP, then heart racing, muscle cramps, wobbly legs, the whole 9 yards.


What did we learn from this? Either the banana's were a terrible idea(she has only had oral allergy in the past and did fine with some cooked the other day)or despite the PB2 listing only peanuts,salt, and sugar they may be contaminated either or all soy,dairy and or corn- Or she is allergic to peanuts?


However, as usual, there is a bright side to this awful attack. Within 30 minutes everything she had struggled with this winter that everyone was certain was due to the progression of the mito had reappeared. Which confirms that it wasn't Mito this year, but allergies.


Even her proteinuria shot through the roof after a few days of under 100.


It was bound to happen. As we try new foods, or questionable foods this could happen again. Abby said despite the absolute misery, that it was sooo clear after having a really good day that all that she has been suffering with this year, either was allergies or triggered by allergies. Now that she has been clean she said it was so obvious that it was allergies.



The depletion is there as is her myopathy- eliminating allergens isn't going to make that go away, but it sure made a whole slew of very scary symptoms go away.

She hasn't even had a dysautonomia or POTS flare in 4 weeks- the longest she has gone in 3 years. Of course, after the allergy flare last night the POTS symptoms were already back..


This weekend is going to be some seriously blah food for Abby, and after last night-she said she will be grateful indeed for boring and safe foods.


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