WARNING: the foods we cook for Abby are safe for her, but not necessarily for everyone. Please confirm any ingredients are safe for you before using in your diet. Food Allergies can kill and the best policy is complete avoidance. Read this post for more info.

Friday, June 29, 2012

Everything BUT Oats Granola!




I am hopelessly turning into a crunchy mom... from understanding organic doesn't always mean healthy to which farmers in Houston have the safest foods to even going as far as making our own soaps when needed, I have converted from twinkie Mom to granola Mom :-) But Wait! The one thing I had not made yet was granola- so I could not be the crunchy food warrior quite yet!


At issue is that Abby is also allergic to oats. A shame because in the world of healthy,crunchy and raw ,oats reign supreme in the food arena. She is also allergic to nuts- pretty much every granola recipe has oats and nuts..


Today I fearlessly decided who needs oats or nuts in granola anyway?

Abby and I hauled out our squirreled away supplies of healthy and crunchy foods.- We used "rice and shine" hot cereal,unsweetened dried coconut,crushed up stale rice cakes, some ginger crackers that did not taste very good but were nice and crunchy.. dried blueberries,some dried diced figs,some rough ground flax,some plain puffed rice and millet. I would say about half was rice puffs and crushed rice cakes. We probably had about 4-5 cups of dried ingredients.


Then we used Alton Browns mix of oil(coconut for us),brown sugar, and maple syrup. We did double the sugars but not the oil(Maybe not completely crunchy yet! A real crunchy Mom would cringe at the amount of sugar we used!!! LOL) since we decided some of our crunchy items might need an extra dose of sugar to hide their funky flavors we also used a liberal shake or two of pink himalayan salt..


His recipe says an hour or so to bake it- which I tried on the first batch and it way over cooked it in my toaster oven with convention function.(too hot to turn the gas oven on today!)it ended up taking about 30 minutes of bake time stirring every 10 for the perfect No oats granola!


Abby and I are now actually looking forward to trying new items and tucking them away in the pantry as reject items. Eventually we will have 5 cups worth to coat in maple syrup,sugar and dried blueberries! Might become a monthly activity- who knew making granola could be this easy or thrifty or fun??


Thursday, June 28, 2012

Your DNA doesn't matter...





as much as "perception".

I think I have admitted here before, I am a total science flunky- I have to work incredibly hard to follow the biology you must learn to understand mitochondrial disease and despite my efforts at educating myself I am still struggling with a number of the concepts..

It doesn't help that the minute anyone says Math,Science, Biology,Chemistry- I can actually visualize a giant lead door in my brain swinging shut at lightning speed!


I got an email from MTHFR.net yesterday. I have started to "wade" into the world of MTHRF but have not taken the plunge yet, I guess I am waiting for something to click and propel me into "wanting" to learn more.. When I get an update email from the site I always go hoping, that whatever update that pops up with ignite a passion to throw myself into that path. What met me yesterday was a video by Dr. Lipton.

If Dr. Lipton had been my first science Teacher, I would have become a hopeless addict to all things science.


This is a very lengthy video. But, about halfway through something very important becomes clear, our DNA doesn't dictate what occurs in our body, but our "perceptions" do. Basically, he explains that in the lab they have removed the nucleus from a single cell and the cell continues it's normal span - if the nucleus is the brain, how can the cell continue? He explains how the media "misunderstood" the process years ago, and now many of us believe our DNA dictates what happens in our body, when it doesn't.


I admit, I wanted to turn the video off a few times, but before I knew it, I was sucked in- he is a captivating speaker to say the least. The best part is I feel like my biology foundation has finally been laid properly.

He appears to have a number of video's on youtube- I plan to watch them as my anti-science brain tolerates!

This is the one though I recommend you watch first-

Dr. Lipton-The New Biology-Where Mind and Matter Meet.

Wednesday, June 27, 2012

Ice Cream!




One of my fondest memories was at my Uncles farm house during the summer and we made blackberry ice cream in the old hand churned bucket... Not sure if it was just a terrific day that made that ice cream so amazing, or all the work it took to make it but since that day every summer that old addiction to ice cream rears its ugly head!


Sara and Abby both inherited my appreciation of frozen treats. Dairy is out of the question! So is Soy! We did find coconut milk ice cream that costs an arm and a leg, is full of funky ingredients that don't sit well with Abby but it tastes pretty good!

Admittedly, making homemade ice cream has always been on my list of things I wanted to learn how to make homemade. So last week we did it!

I am so not lying, that canned coconut milk made some seriously smooth and silky ice cream- I think we might have beat Ben and Jerry's in a taste challenge!!! :-)

First I read a lot of ice cream recipes that turned out to be almost as entertaining as eating the ice cream! From dairy to sorbet.. from no eggs to 10 eggs,to using gelatin and other ingredients I never thought I would find in ice cream, it seemed my options were endless. I leaned toward the "custard base" because despite how unhealthy this ice cream is(from a calorie-fat standpoint), I wanted to make sure to get some good egg protein into it for Abby- at least if I added eggs I would not be forced to put our ice cream in the junk food category! LOL Also,I love custard ice creams! Down on Louetta in the Champions area of Houston there is a little ice cream shop called Brewsters- they make a rich custard based ice cream that I still dream about! So custard base it was!


Here is my "inspiration" recipe "Ice Cream base Recipe"

First I cut the recipe in half- no need to make ice cream for 20!

2 cups of the cream from canned coconut milk(save the water to add to the eggs plus chocolate )- full fat coconut milk- we read the ingredients carefully- you can find coconut milk that is clean- just have to hunt and be prepared to pay :-)
4 egg yolks
2 teaspoons vanilla(I threw a vanilla bean in while cooking and it worked well)
1 cup sugar(we have been using Imperial cane without corn problems)
3/4 cup NOW cocoa powder(we don't know if it was this cocoa powder or the fact that the ice cream was so rich that set off Abby's GI)
1.2 teaspoon salt( pink himalayan of course!)

For the most part I followed the inspiration recipes directions. When I mixed the eggs with the chocolate it was very thick almost like brownie mix-I panicked for a minute I knew that was not going to work! I had some of the water from the coconut milk sitting in the can beside the bowl and decided to add a 1/2 cup of the water to thin it out- worked out fine! I added sugar until it was sweet enough for us(we have sweet teeth!)so start with 3/4 cup and be prepared to add up 1 1/4 depending on the cocoa powder you use.

A few things I learned-
1)Make the ice cream base the day before and to make sure it is as cold as you can get it without freezing it.

2)The cheap ice cream makers are cheap for a reason. It did the job, but I still had to throw the finished product back in the freezer for an hour to get it harder- in our house soft serve doesn't cut it!

3) Abby just struggles with Chocolate- we keep trying to add it back in, but no matter how clean the chocolate is, she reacts. She has even admitted that it is time to quit trying- she figures there are hundreds of other flavors that she loves and won't make her sick. Not sure if it triggers histamines or if she simply has developed an allergy- but if she is willing to give it up, so am I.

4) A really nice ice cream maker would be dangerous- very dangerous. I am thinking maybe the cheap annoying one that needs extra steps is way safer for me in the house! LOL

5) Next up, a healthier experiment. Thinking a sorbet...

6) After a night in the freezer, the ice cream was perfect. Not too hard because of the coconut fats-

7) I took the nice ice cream maker I have been looking at this year off my birthday list and for the safety of my waistline added a juicer instead!

Tuesday, June 26, 2012

Figs-





I have to admit, never been a huge fig fan, but never needed to be.. dried apricots,prunes,dates,raisins and an abundance of other fruits kept me away from the fig. Unless it was in a fig newton that is! I have some fond memories of eating entire packets of fig newtons... In our past food life that is! :-)


In all seriousness though, Abby is very limited in fruit choices. As I think of a new one we look it up on the histamine list, if it is safe there she samples. Most have failed the sample test- except figs. The figs sat so well with Abby that it really has been hard to keep her away from them, and after reading more about them, I figure she can eat all she wants! (unless she struggling to keep her BP high enough, as they can lower Bp)


As we are headed into fig season I have been reading about fig recipes, fig freezing, fig drying.. even fig canning! Some of the huge benefits to figs listed below;

Health Benefits
Help Lower High Blood Pressure

Figs are a good source of potassium, a mineral that helps to control blood pressure. Since many people not only do not eat enough fruits and vegetables, but do consume high amounts of sodium as salt is frequently added to processed foods, they may be deficient in potassium. Low intake of potassium-rich foods, especially when coupled with a high intake of sodium, can lead to hypertension. In the Dietary Approaches to Stop Hypertension (DASH) study, one group ate servings of fruits and vegetables in place of snacks and sweets, and also ate low-fat dairy food. This diet delivered more potassium, magnesium and calcium. Another group ate a "usual" diet low in fruits and vegetables with a fat content like that found in the average American Diet. After eight weeks, the group that ate the enhanced diet lowered their blood pressure by an average of 5.5 points (systolic) over 3.0 points (diastolic).

A Sweet Way to Lose Weight

Figs are a good source of dietary fiber. Fiber and fiber-rich foods may have a positive effect on weight management. In one study, women who increased their fiber intake with supplements significantly decreased their energy intake, yet their hunger and satiety scores did not change. Figs, like other high fiber foods, may be helpful in a weight management program.

Fruit and Cereal Fiber Protective against Postmenopausal Breast Cancer

Results of a prospective study involving 51,823 postmenopausal women for an average of 8.3 years showed a 34% reduction in breast cancer risk for those consuming the most fruit fiber compared to those consuming the least. In addition, in the subgroup of women who had ever used hormone replacement, those consuming the most fiber, especially cereal fiber, had a 50% reduction in their risk of breast cancer compared to those consuming the least. Int J Cancer. 2008 Jan 15;122(2):403-12.

Fruits richest in fiber include apples, dates, figs, pears and prunes. When choosing a high fiber cereal, look for whole grain cereals as they supply the most bran (a mere 1/3rd cup of bran contains about 14 grams of fiber).

An Insulin-Lowering Leaf in Diabetes

You probably do not think about the leaves of the fig tree as one of fig's edible parts. But in some cultures, fig leaves are a common part of the menu, and for good reason. The leaves of the fig have repeatedly been shown to have antidiabetic properties and can actually reduce the amount of insulin needed by persons with diabetes who require insulin injections. In one study, a liquid extract made from fig leaves was simply added to the breakfast of insulin-dependent diabetic subjects in order to produce this insulin-lowering effect.

Bone Density Promoter

Figs are a fruit source of calcium (79 milligrams in an 8 oz-wt serving), a mineral that has many functions including promoting bone density. Additionally, figs' potassium may also counteract the increased urinary calcium loss caused by the high-salt diets typical of most Americans, thus helping to further prevent bones from thinning out at a fast rate.

Cardiovascular Effects

In animal studies, fig leaves have been shown to lower levels of triglycerides (a form in which fats circulate in the bloodstream), while in in vitro studies, fig leaves inhibited the growth of certain types of cancer cells. Researchers have not yet determined exactly which substances in fig leaves are responsible for these remarkable healing effects.

Besides their potassium and fiber content, figs emerged from our food ranking system as a good source of the trace mineral manganese.

Protection against Macular Degeneration

Your mother may have told you carrots would keep your eyes bright as a child, but as an adult, it looks like fruit is even more important for keeping your sight. Data reported in a study published in the Archives of Ophthalmology indicates that eating 3 or more servings of fruit per day may lower your risk of age-related macular degeneration (ARMD), the primary cause of vision loss in older adults, by 36%, compared to persons who consume less than 1.5 servings of fruit daily.

In this study, which involved over 100,00 women and men, researchers evaluated the effect of study participants' consumption of fruits; vegetables; the antioxidant vitamins A, C, and E; and carotenoids on the development of early ARMD or neovascular ARMD, a more severe form of the illness associated with vision loss. Food intake information was collected periodically for up to 18 years for women and 12 years for men.

While, surprisingly, intakes of vegetables, antioxidant vitamins and carotenoids were not strongly related to incidence of either form of ARMD, fruit intake was definitely protective against the severe form of this vision-destroying disease. Three servings of fruit may sound like a lot to eat each day, but by simply tossing a banana into your morning smoothie or slicing it over your cereal, topping off a cup of yogurt or green salad with a couple of diced figs, and snacking on an apple, plum, nectarine or pear, you've reached this goal.

(read more at; WHfoods )

Also ran across some interesting information on the "leaves" from the fig. The leaves and unripened figs can create latex- so latex sensitive or allergic folks should show caution.

Home Remedies using fig leaves:( visit Natural News to learn more)

- Bronchitis - Place two to three fig leaves in a half liter of water with some piloncillo and bring to boil. Let the water boil for 15 minutes and then remove the leaves and drink the tea.

What is Piloncillo?

http://mexicanfood.about.com/od/mexicanfoodglossary/g/piloncillo.htm

- Cardiovascular and Cancer patients: Try drinking some freshly made fig leaf tea. Also, eat some fresh figs daily.

- Genital warts - Take one of the fig leaves and apply the milk or sap from the leaf to the affected areas.

- Hemorrhoid - Place two or three of the leaves in one liter of water and bring to boil. Boil for at least 15 minutes. Remove from the fire and let the pot cool. Remove the leaves from the tea and use as a sitz bath or apply to the affected areas.

- Liver cirrhosis - Take 4 leaves, wash them thoroughly and pound them with any type of sugar candy. Fill a medium glass with water and drink this twice a day.

- Lower blood pressure - Place 3 fig leaves in half liter of water. Boil for 15 minutes and drink daily.

- Ringworm - Cut open a leaf and take the milk or sap. Rub on the ringworm. This procedure works immediately.

- Scalp fungal infections, warts and boils - Follow the above directions.

- Shingles: Place three to four fig leaves in 2 cups of water. Boil for a few minutes, let cool and remove the leaves. Take a wash cloth and dip in the water and apply to the affected area.

- Ulcers - Every day chew two fig leaves and swallow the whole leaf. People with advanced ulcers should do this in the morning on an empty stomach.

Http://www.earthclinic.com

http://en.wikipedia.org/wiki/Fig_leaf

http://paroslife.parosweb.com/story.html?story=1962

Abby and I have been busy browsing Pinterest and found a list of recipes we can alter to make allergy safe and to add figs into... there are many varieties of figs and depending on the variety they are best used in different recipes. Some do better dried, some do better canned. There are a few types best eaten fresh.

Lastly- for anyone watching their calories, figs are surprisingly low calorie!



Sunday, June 24, 2012

Abby's Favorite Sandwich Bread...





(not the fluffiest loaf, but firm enough to make sandwiches )


Up until this week we have stuck with coconut/tapioca based quick breads for Abby. Mostly because she liked the first attempt, and because I was leery about trying yeast, gluten free and the bread maker..or really anything new- if we find something that agrees with Abby we stick with it! Plus, I could sneak rice protein into the quick bread, and I am doubting the yeast bread in the bread machine is going to tolerate the extra proteins.

To be totally honest, I did try a few different bread machine gluten-free/dairy free recipes- with really hideous results, I hate admitting defeat. I gave this one a go and Abby is head over heels in LOVE.. I made this loaf yesterday, and you can see I only had half a loaf to take a picture of!


I got the "base" recipe from The Gluten Free Goddess(Thank you Goddess!), modified it to work for Abby. FYI- for anyone corn allergic Abby is more "corn lite" she tolerates small amounts of corn contamination in her GI, but zero tolerance for inhaled contamination.

We don't use guar gum or xanthan gum out of worry of corn contamination.


First- whisk together your dry ingredients and set aside: DO NOT ADD to your BREAD MAKER PAN YET!!!!!!!!

3 cups all purpose gluten-free flour mix of your choice.(her mix of flours included sorghum which Abby cannot have- check the link above for her measurements and her blend-sorghum hands down makes a superior bread)
1 1/4 teaspoons pink himalayan salt(her recipe called for sea salt)
1 packet rapid dry yeast or 2 1/4 teaspoons(I used red star and though it might be corn contaminated it doesn't seem to phase her.)


For the bread machine: I have a machine with a gluten-free button option.

Pour the liquid ingredients into the bread machine pan FIRST:

1 1/4 cups warm water(purified bottle water) (at 110 to 115ºF)
1 tablespoon melted coconut oil (original calls for 3 tablespoons olive oil, but we avoid olive oil for Abby)
2 Tablespoons grapeseed oil(seems to bake better and Abby tolerates well)
1 tablespoon honey-
1 Tablespoon Imperial brand granulatedsugar (or could double the honey, but Abby likes extra sweet and so far Imperial has not corned her!)
1/2 teaspoon fresh squeezed organic lemon juice
3 organic free-range eggs(never feed grain), beaten or 1 tablespoon Ener-G Egg Replacer whisked with 4 tablespoons warm water till frothy (original recipe calls for 2 eggs)

Gently pour the mixed dry ingredients on top of the liquid.

Set your bread machine program for 2.0 or 2.5(original was for 1.5, but without the xanthan gum and with the additional egg I added, it is "moist" "heavier" and needs more time) loaf medium crust. I used the gluten-free cycle on my machine; if you don't have a gluten-free cycle, a rapid rise cycle will also work.(so the original recipe claims)

Check the dough after a few minutes of kneading- it should be closer to a muffin batter than bread dough, soft, but not cake batter wet(never had to add more water). Adjust dry to wet ratio with a tablespoon of flour or warm liquid, as needed. Humidity influences the dough. As does temperature (your bread will rise higher on a hot day).

If you like a crusty loaf (or your past experience results in a gummy center/fallen top) remove the bread from the pan and place it in the oven at 350ºF for an additional 10 minutes- keep an eye on it and don't let it get too brown. It should be a light golden color. (I offered this to Abby, but she loves that hers turns out "moist".)

Cool the loaf before slicing for best results.(you can see Abby did not slice very straight, but it still tastes good,straight or crooked! But, best to let it cool)




Enjoy fresh from the oven- the first day (as with most gluten-free baked goods) has the best texture and taste. This bread toasts well- we lightly toast it to firm it up to hold up well to a sandwich.

Freeze leftover bread as slices, wrapped in a paper towel and bagged in freezer bags. Thaw to room temperature. We find after thawing, it is better to toast the slices.

Saturday, June 23, 2012

Mito Teaches..






Believe it or not being on the Mito Journey has taught us a lot of really positive lessons.

1) My daughters are my life. I never really bought into that personal fulfillment racket that claims you cannot be a happy person unless you prioritize yourself above your children and spouse. Mito reinforced my opinion.

2) It has made my marriage stronger. Derek puts our daughters above everything else as well- I suppose we always have been aware of that in each other, but Mito brought that awareness and that bond to the surface.


3) I always suspected that Drs. could be wrong and to avoid Drs. that refuse to admit they are wrong. Mito proves that we often know more then they do, and if the Dr. refuses to admit that or brushes aside your methods- you should break up with them and FAST!

4) There are a few Drs. out there that do think outside of the box, and they are rarely the specialists. Our family Dr. who applauds our methods and gains, the podiatrist who has another patient with similar chronic health issues, even the alternative health practitioners who approach health delicately instead of steam rolling. Mito has taught me to appreciate Thinkers- those who learn the rule book, but love to figure out how to work outside the rules-

5) We are what we eat. Food is critical- it is the easiest way to address the enormous energy issues with Mito. If you fuel your body with fuel that it is not meant to have, you will hurt your body. Hands down, the Mito has taught us how miraculous the human body is and that all the chemicals the Government lets manufactures put in our food is hurting all of us, just slower in healthy people.

6) Strengthened my political beliefs. Dependency on the government may serve folks today, but will destroy America tomorrow. From vaccines to FDA approval on medications Mito has made me very aware that we are a nation becoming dependent on the government/Drs to make our decisions for us- when we are quite capable of taking care of ourselves- maybe it is easier to let someone else do it, but the pursuit of happiness cannot happen without the freedom to make personal decisions- and our bodies are kind of number 1 on the personal decisions list.

7)Mito has spotlighted my personality characteristics. I am stubborn, opinionated, determined, different, and intolerant of ignorance. I have always been aware of those "flaws" but Mito has taught me that Abby is lucky I have those "flaws". Without my willingness to challenge various treatments Abby would not be eating normal foods right now, odds are she would be in the hospital violently ill.

8) Mito has taught me I have a lot to work on.. I am not patient, or as tolerant as I should be, I expect everyone to think for themselves despite a culture that discourages it. Just because I am willing to stick my neck out there, doesn't mean everyone else is capable or willing.

9) Conformity can enlighten or kill- depends on who you pick to lead.

10) It is better to think from a stationary position. Over the last couple years I often felt like we were being left behind in a world that values running from sun up to sundown. Up and dressed at 6am- to work or to the gym, to clubs and groups, to the schools, to after school activities, daily social gatherings.. it made me feel isolated that we could not keep up with those who live that life style for a long time. But, Mito has taught us when you are running you aren't thinking. Being stationary has vast advantages once you are willing to let go of the cultural norms. Protecting her energy at all costs has opened a very different but very rewarding world to all of us.

11) I value my friends and family who see that though we live differently, we have a different type of richness in our lives- they share the world they get to explore and we gobble it up, and they see that despite being stationary we have a whole world to share with them too- trade off not judgement makes our worlds and friendships much deeper and richer. I value those who do not look at my life with pity that we cannot live as they do, but see our choices as valuable and rich in our own rights.

12) Generally, as humans, we react violently if our beliefs are challenged. If I have a Dr. that practices medicine in a way that fits with our lifestyle choices, it is very hard to accept that the same Dr. maybe very wrong and bad for the next patient. No one no matter how educated knows everything- and anyone who claims my knowledge has less value then theirs I tend to run from. I have learned to look deeper then what works for me, and acknowledge it likely won't work for someone else.

13) Children do not have the same rights as adults. As an adult I have the right to chose whether to accept a treatment or not, when it comes to children the government and Medical worlds have more rights to those decisions then parents. That is wrong- parents rights need to trump the Government or Drs. Through the Mito journey I have watched children receive treatments that their parents did not necessarily agree with but because they were considered the "gold standard" they had no choice(the fear of courts,judges,CPS prevent many from saying no). Mito has made me very thankful that the first muscle biopsy simply showed undefined myopathy and not Mito- for a long time having an undefined diagnosis seemed horrible, looking back Abby benefitted tremendously from not being forced into that tiny diagnostic box.

14)Mito has taught me that materialism can interfere with prioritizing our families. I have friends who work not just for the personal career satisfaction, but to buy that new car every 3 years.. to have granite counters(is autumn yellow really that bad?)to have that Wii or those family vacations.. I have watched them turn the care of their children over to the schools, the daycares in order to work to buy those toys. If that is the lifestyle you want great- but, what I have learned is a lot of Mom's want to be home with their kids- finger painting, cuddling, but feel too pressured by our culture to do it all. Our value is often tied into being super mom - we call it the "plastic family" ideal. We have plastic family friends who are healthy and loving and we cheer them on! But we also have plastic family friends who feel incredibly pressured to be plastic families when in reality they would be thrilled with autumn yellow countertops if it meant being able to raise their children vs paying someone else to do it. Choosing Autumn countertops over granite left me insecure for a long time.. Mito taught me I am one of the lucky ones. I ignored the social pressure and did what was right for our family.

15)Sometimes we know too much, knowledge can be dangerous. Mito has taught me to trust that good old Mom gut before my brain.

16) The internet was not created by Al Gore- but by God and all those angels to keep all of us Mito families sane and healthy!!! LOL In all seriousness though, I still remember when Abby was 15 months old and Dr. told us they were sure Abby had Muscular dystrophy- I was destroyed. A friend invited me to go on their new computer and see if I could find something on the internet. I had heard of the internet but still had this image of those awful first apple computers where we would spend all semester typing in miles of codes so that at the end of the term we would be rewarded with a dotted smile- that barely replicated a smile!(boy that dates me, doesn't it?) There wasn't much way back then, but the little bit that there was I read in two days and learned more then what I would learn in 30 appointments with different Drs. When Moms all finally managed to plug into the internet the surge in information was amazing! Today, we get 10 minutes with a dr- but we share that 10 minutes with 1000 other Moms who each share their 10 minute experience and we suddenly have 1000's of minutes of knowledge at our fingertips- talk about miracles in my lifetime!

17)I feel very lucky that Abby has stayed this healthy. Our hope is that she stays this healthy forever, but on the off chance she were to get sicker she is old enough to decide whether to get a feeding tube or any of the other highly complex decisions so many Mito families are faced with..In Derek's family they have Huntington's disease. We watched an Aunt in her 30's slowly and painfully starve to death in pain and agony for years. His family believes in doing everything to maintain life- my family is different. Some of us might fight for awhile, but we often chose comfort and peace over fighting once we know the end is coming. I don't want to ever have to make those decisions again- Neither Derek or I believe in prolonging suffering, we decided to let our second child go shortly after birth because of how strongly we feel. Though I feel we made the best decision for our lost daughter, it was the hardest thing we have ever done- I don't want to ever be faced with that decision again, with anyone I love. I feel a bit like a chicken feeling so relieved that with Abby even if she were to get sicker(which we doubt) that we won't have to decide- it is up to her on how she wants to live her life- there is freedom in knowing that and knowing that we will feel very comfortable supporting her individual decisions no matter what she decides to do in her life.

18) Each smile we share with another human is a priceless gift. We play the smile game when we go out and about(we started it when the girls were barely out of diapers)- we all compete on how many people we can make smile back at us- Abby always wins- but it is a valuable game. On my darkest days a single smile or kindness even at the grocery store can completely put me back on the right track- Mito has taught me that basic human kindness is the heart of everything.

19) Mito has taught me that your journey is just as scary,just as tiring, just as draining as mine. A Mom with an asthmatic child suffers the same fears, concerns, terrors that a Mom with Mito does. A Mom with a talented ballerina child who breaks an ankle suffers the same anguish that I suffer. The Mom of a child who is anorexic or bulimic suffers the same emotions and anguish that we all do. Mito has taught we all suffer equally- different journeys but the same emotions.

20) Finally, the truth is, you cannot spoil a baby by holding them all the time. I promise you, love those babies all ya want! Mito reinforced that despite me holding Abby 24/7 and her co-sleeping, she turned out amazing! So pick up those babies!

Friday, June 22, 2012

Germs-






My Uncles headed home at the crack of dawn this morning.

It just broke my heart to see them go. I think that everyone has those couple family members that you have always cherished above all others- these two guys are my favorites.


I think what endears them to me most, is that they "get" Abby. A rare thing in both our families. Not only do they understand why we do what we do, they applaud our efforts- and both said they would do the same thing if Abby was theirs :-) They teased that soon the next step for me is to figure out how to bubble our house- I told them, don't tempt me! :-)

On the other hand, now it is time to get back to the grind. I normally don't run around too much I like being at home with Abby and I hate the thought of bringing germs from all over town home on me(we all change when we come home from anywhere to minimize and also wash those hands!) so my routine has been shredded, but in a nice way!


Abby is still dragging. She looked a bit better yesterday, but it was a huge crash this week, and heart breaking for me to see. She did catch a nasty cold which always drags her down. Just taking a bit longer to get her back to baseline then I want.

The most frustrating part when she is ill isn't the around the clock sleep,or that her kidney proteinuria flares, it is that her body just quits trying to digest- I am glad it passes through now without the poisonous miralax, but if she isn't digesting she is not getting the much needed energy to get better.


My next step in project elimination is to create some sort of high fuel/easy digest food plan for her while she is sick like this..

With Derek traveling, and bringing home new strains of colds etc, it is hard to keep the house free of the germs- after the next trip, I think I will try decontaminating him at the door! LOL But seriously, I just might!


Wednesday, June 20, 2012

Another new favorite allergen free recipe!






My favorite Uncles leave tomorrow. I know it is time for them to go, and usually Derek and I are content to live as far away from family as we do, but for whatever reason I just don't want to see these guys go home! I have truly enjoyed them!


I have still had time to putter in the kitchen for Abby. She had a rough week this week. So, I had to find something that would appeal to her and encourage her to eat.


I did manage a gluten free, corn free,soy free, dairy free, nut free bread in the bread machine- it wasn't perfect but Abby was thrilled! We haven't found a sandwich bread either at the store or making at home that she could eat, so this was a huge accomplishment.


The recipe I am going to share is much easier though. I had a big bag of puffed brown rice in the pantry. With the limited foods Abby can eat she hasn't had anything crunchy like cereal or snacks or crackers in months. I decided to figure out making either some sort of "kettle" puffed rice or "caramel" puffed rice. It really turned out terrific. I think I burnt my sugars a touch and with the coconut oil instead of butter and no dairy, it really reminds of sugar smacks- not a bad a thing at all! I will be making this again and again.

Candied Puffed Rice

Put 1/3 c. coconut oil, 1/2 c. palm or coconut sugar (or other natural sugar) and 1/4 c. real maple syrup in a small saucepan. Add a pinch or two of pink himalayan salt.
Heat the mixture on medium high. Be sure to keep stirring. Bring to a boil and allow it to boil for 2 minutes, without letting it burn!
Pour over the 2 1/2 cups puffed rice or millet. Using a large wooden spoon, gently stir the puffed rice until all of the pieces are coated.
Spread the coated puffed rice onto a greased cookie sheet.
Bake for about 15 minutes at 300 degrees. (mine seemed cooked at 10 minutes)
Store leftovers in an airtight container.

Here is a LINK to the original recipe that I tweaked and modified for Abby.

Monday, June 18, 2012

Pink Himalayan Salt-






One of my newest online friends via the Mast Cell groups shared this post on her blog- she was glad to hear I wanted to share it.


We use pink himalayan salt primarily now. IT tastes better then regular salt. You can find it at Whole Foods and probably Trader Joe's and I have seen it various other places.

Here is Jaime's great post explaining about the benefits and why you too should swap out to the good pink stuff!

Pink Himalayan Salt

Himalayan crystal salt is far superior to traditional iodized salt. Himalayan salt is millions of years old and pure, untouched by many of the toxins and pollutants that pervade other forms of ocean salt.
Known in the Himalayas as “white gold,” Himalayan Crystal Salt contains the same 84 natural minerals and elements found in the human body. This g form of salt has also been maturing over the past 250 million years under intense tectonic pressure, creating an environment of zero exposure to toxins and impurities.
Himalayan salt’s unique cellular structure allows it to store vibrational energy. Its minerals exist in a colloidal form, meaning that they are tiny enough for our cells to easily absorb.



http://www.globalhealingcenter.com/natural-health/himalayan-crystal-salt-benefits/

Sunday, June 17, 2012

Holding up Well!

My favorite Uncles got here Friday- Abby stayed out in the living room with us and on her feet the entire afternoon! I truly felt like a proud Mom watching her child ride without training wheels!


Yesterday she ended up sleeping the majority of the day, which is not only understandable but also good for her. She is learning when to stop and just rest.


Not sure what today will bring, but I know it will be worlds better then what we had last year. We have our favorite Fathers to celebrate today with and a much healthier Abby- not sure it gets any better then that..

Derek is the world's best husband and Father. I cannot believe that he has hit the ground running even with jet lag from flying to and back from Australia in just a week. He too enjoys my Uncles and knows how important they are to me. Plus, he really enjoys their company too!


Hoping I will get to back to posting on the blog more frequently after their visit.


Friday, June 15, 2012

Gluten free Toasted Coconut Blondie Brownies-

We needed a good recipe that not only Abby would enjoy, but company would enjoy-


This is a new favorite!

I substituted coconut oil for the butter-

Used homemade baking powder to avoid corn. Used our own gluten free flour to avoid corn.

Truly easy and delicious!

I added a heaping teaspoon of ginger powder as well for extra spicy.

Next time Abby and I think we will use the ginger syrup and some lemon with her corn free powdered sugar to make a sweet glaze instead of the coconut on top- though toasted coconut on top was really delicious too!

Thank you Tropical Traditions for this great recipe!

Gluten Free Toasted Coconut Ginger Blondies
Posted At : May 12, 2010 8:39 AM
Ahhh....the recipe you've all been waiting for. Well, maybe not all of you but some of you for sure.

When I posted the first Toasted Coconut Ginger Blondies recipe I promised a gluten free version. So here it is. I was very happy at how they turned out; creamy and moist with a nice chewy texture and toasty crunch from the toasted coconut on top. My mouth is full of said blondies as I type. Seriously.

You can use something else instead of ginger (like chocolate chips or nuts).But that's up to you. I just wanted to get rid of the rest of our candied ginger, so in they went.

Were you waiting for this recipe? Are you going to make it now? Tell me, I'd love to hear from you!

Sarah:)

Gluten Free Toasted Coconut Ginger Blondies


Gluten Free Toasted Coconut Ginger Blondies
Prepared by Sarah Shilhavy, Photo by Jeremiah Shilhavy
Servings: 20 bars
Preparation Time: 15 minutes

12 tablespoons (1 1/2 stick) salted butter, melted(coconut oil)
1 cup brown sugar
4 teaspoons vanilla extract
2 eggs
2 teaspoons organic raw whole milk or coconut milk*
1/2 teaspoon baking powder
1 1/4 cups flour mix (see below)(used a gluten free/corn free mix instead)
1/2 cup chopped crystallized ginger
1/2 – 1 cup flaked coconut
Preheat oven to 350 degrees. Lightly grease an 7x11 inch pan with coconut oil.

Mix melted butter and sugar together in a medium sized bowl. Beat in vanilla, eggs and milk until well blended.

Mix remaining ingredients except for the flaked coconut into the egg mix until well blended. Pour into prepared pan and smooth the top out. Sprinkle with flaked coconut.

Bake blondies until golden brown and coconut is toasted, about 20 minutes.

Gluten Free Flour Mix:

1 cup brown rice flour
1/2 cup coconut flour
1/4 cup cornstarch
2 tablespoons tapioca flour/starch
1 1/2 teaspoons xanthan gum
Mix all ingredients together until well blended. Use as directed.

* For the freshest coconut milk make homemade coconut milk. (See video at this link.)
Recipe courtesy Sarah Shilhavy




Tuesday, June 12, 2012

Ginger is good for you, and tasty too!









Ginger is one of the "foods" we have taken a closer look at for Abby. Ginger seems to really help ease her nausea and stomach upset so figured it was worth a closer look.

The Ginger People have a ton of terrific articles on the potential benefits of ginger.


Here are a few of my favorite bits on ginger;

Ginger and Fighting Pain
Ginger contains anti-inflammatory compounds called gingerols. They are believed to be responsible for the relief reported by many arthritis and chronic pain sufferers who regularly consume ginger. "It [ginger] works like Ibuprofen, but without the side effects."
Source: Neal Barnard, M.D. author of Foods That Fight Pain

Posted in Health By Nicole DeCarli

Promoting Digestion
Historians say Confucius ate ginger with every meal. This legend has credence due to ginger's enzymatic properties which help break down food.
"Ginger increases digestive movement through the stomach and duodenum, and has also been shown to stimulate several valuable digestive enzymes in the pancreas. The enzymes in ginger bread down protein efficiently and rapidly, leaving the digestive system free of any discomfort.

Source: Alternative Healthzine

Posted in Health By Nicole DeCarli

Boosting Immunity with Ginger
Called "the Great Medicine" by ancient Indian vaids, ginger has long been touted by herbalists for its cleansing effect on the body, removing toxins and restoring the body's balance.
"Ginger is loaded with virus-fighting substances, including several that act directly against cold viruses."

Source: Jim Duke, author of The Green Pharmacy and former USDA medicinal-plant expert.

Posted in Health By Nicole DeCarli

So that gives you an idea of why I have decided to increase the amount of ginger in Abby's(and my) diet. Our latest efforts were to make our own candied ginger and ginger syrup- I am so glad I did! I think it turned out better then store bought and way cheaper!

Candied ginger can be used in baking or even in savory foods and of course, a tiny piece of candied ginger is a great way(and tasty) to settle your stomach. The ginger syrup was new to me. Since the process of making the candied ginger also creates a ginger syrup I decided to save it and see if we can find uses for the syrup- did not take long! Amazing in tea, over fresh fruit, poaching pears, a delicious syrup over gluten free waffles or pancakes.. mixed into marinades...

This LINK takes you to the recipe I followed to make my candied ginger and syrup.

I diced my ginger after removing the skin with a spoon(very easy, just flip the spoon backwards and scrap the thin skin off the ginger root) Some folks slice thin rounds of ginger, but we like it cubed/diced.

We let it dry for a full day and a half- I then store it in a jar in my pantry. The ginger syrup is in a jar in the fridge, and disappears very fast!

A friend who's son battles very low BP did warn she had read that ginger can reduce BP- which for most of us isn't an issue, but with our children with POTS and Dysautonomia we should keep an eye on their BP - if Abby's BP is low, just to be safe we are going to slow or avoid ginger.



Monday, June 11, 2012

Milestones...





We have been trying to "tidy up" and clean before my Uncles come to visit. One of the area's in my house that is always a redhot mess is my pantry- not sure why it refuses to stay organized, but I have pretty much thrown in the towel.. When it gets to be too messy I plead and beg and bribe anyone in the house to tidy it for me! Before my Uncles get here it was past due for a clean out.. I was moaning and groaning about having to clean it out all Saturday... Yesterday I was having my coffee, and Abby and I were chatting and finally she could not resist and told me to look in the Pantry- it was well organized and tidy! What an amazing treat! Even better was that Abby was beyond tickled with herself. She said she woke up at 2am ready to go and decided to try to organize the pantry as a gift to me.. It wasn't that she had managed to clean the pantry that she was tickled about, or surprising me.. it was that she was able to tidy the pantry and she wasn't wiped out from it!

Last year before she got so sick she did it once and absolutely wiped her out.. for her to be able to do it and not be tired means not only have we turned back the clock by a year, but her stamina is improving!


I thought about her joy at being able to do a chore all day yesterday- her energy is so bad we wash her hair, put her clothes away, put away her towel and toiletries after she showers, make her bed etc. Abby for the last year is lucky to feel "energetic" enough to willingly leave the house every couple weeks.

Her cleaning the pantry is a HUGE milestone in "project elimination".


Mito has made us appreciate these little things as we did when she was a baby- when she took her first steps, smiled, rolled over..


Earlier this week when I feed her quinoa and a few days later she was throwing them up, I was in a panic! All I could think was Oh NO! Not again! I was so happy that she recovered from that in a matter of days and then to celebrate the milestone of pantry cleaning stamina- well that just tops the cake!


I might just mark that on the calendar!

Saturday, June 9, 2012

Leftover Rice Lemon-Coconut Bars






Abby is completely hooked on Lundberg jasmine rice- She honestly would eat it daily with no complaint. I think part of the draw is that I always end up with leftover rice which gets quickly turned into rice pudding for her. I make it baked or on the stovetop with rice, coconut milk, dried blueberries, nutmeg and usually sneak an egg or two in... and of course a healthy dose of either molasses and honey, or honey, or sugar, what isn't to like about that?

However, I am tired of making rice pudding. I thought surely someone out there on the web would have other uses for that leftover rice. I spent two days browsing blogs, pinterest, the web.. I found a zillion different recipes for rice pudding and some dog biscuits, a muffin recipe that simply threw in a cup of cooked rice, and a few really yummy looking savory recipes for leftover rice, but none of them seemed to inspire me.


As you have probably noticed, I am hooked on making treats out of the zero calorie shirataki noodles, which is what really got me thinking about what I could do with this leftover rice.

I decided if I could puree shirataki noodles, surely I could puree rice! (I admit, I am hooked on the show Chopped on the Food network, and when those chef's aren't sure what to do with an item- they puree it!)

I really like the sweetened condensed coconut milk(recipe on this blog entry)and have been trying to figure out what in the world I could do with it. I also had a bag of organic lemons that needed to be used sooner then later. So lemon-coconut, eggs with pureed rice! I really thought I had less then a 50 percent chance this was going to be anything that Abby would be willing to eat, but needed the entertainment! And did I already say that I am getting very tired of rice pudding recipes for Abby????

Eggs from the farm that are free range and fed no grain are one of the few proteins Abby tolerates right now. So of course I had to add those in.. I started looking up lemon custard recipes.. I hoped the end result would at least be some sort of lemon custard like base- but I was delighted when this turned out like a moist/cake like bar.

I threw the rice, eggs, lemon juice and sweetened condensed milk in my ninja and blended and blended. When I tasted it, it needed a little more sugar and despite tons of time pureeing, the rice still had a grainy texture in the batter. After pureeing more the graininess persisted and I decided to quit fighting it- I threw in 1/2 cup unsweetened organic coconut flakes and a dash of salt for good measure. I loved the flavor now, but how to cook it?

Figured with that many eggs it would need a water bath. So I greased an 8x8 with coconut oil and put a baking dish with an inch or so of of water under it and poured the now almost alarmingly thick batter into the greased pan. Threw it in the oven at 375 for 40-45 minutes and hoped for the best! Worst case would be a few extra dishes and work for the garbage disposal :-)

When I finally got brave enough to call it cooked, I pulled it out and it had turned into a firm cake like texture- at first I was worried, after all, I kept thinking "custard" when I was throwing things in my ninja.. but I decided to cut a tiny piece and taste it- WOW like a coconut/lemon brownie! I don't know if the rice cooked down finally, or if the coconut bits and flakes hid the grainy- but it turned out terrific!
I have another allergy safe recipe for Abby! No nuts,no soy,no dairy, no shellfish,no corn,no messing with gluten-free flours.. or the other zillion foods we avoid for Abby.

It reminded me of lemon bars(more texture then gel but soft) or pumpkin brownies.. I popped it in the fridge last night. I figured chilled since it was a heavier texture and thought maybe some fresh blueberry sauce over the top tomorrow..or maybe it would need an icing. Regardless I was done with it till today.

Preheat oven to 375

3 to 3 1/2 cups cooked Lundberg rice(roughly measured, I spooned it clumped out of the rice pot it was from the night before)
4 egg yolks(I had read that the white might block the bodies ability to absorb as much biotin)
2 eggs(yolk and white figured 2 more whole eggs couldn't hurt anything!)
1/2 cup lemon juice(we use fresh organic, but bottled would be fine for most- I did grate a bit of zest in though for good measure)
1/2 half recipe of sweetened condensed coconut milk(take about an hour I had made it earlier in the day using half the recipe HERE)
1/2 cup granulated sugar(from a health standpoint I should have used honey, but as I did not think it was going to turn out I did not want to waste good honey!)
1 dash of salt
1/2 cup unsweetened organic flaked coconut.

I dumped all the ingredients into my ninja except the coconut flakes and started pureeing. I kept blending until it was as smooth as I thought I could get it. I then dumped the coconut in and pureed for another minute or so.

I greased an 8 X 8 pan with coconut oil. I have a larger shallow ceramic pan that I put about an inch of water in for a "water bath". While the batter sat on the counter it did thicken, it still poured with ease into the greased pan though. I placed the 8x 8 in the water bath in the oven- for 40-45 minutes. When the top of the "cake" feels firm to the touch it is done.







Next time I make it I am going to try to make it without the water bath- it might not be necessary.
Very good chilled on it's own, but stunning with a warm blueberry sauce poured over the top.




Thursday, June 7, 2012

Halaynas Hope Blog- Mito Kills.





I follow a lot of blogs these days- on a lot of topics.. The ones I follow the closest are the Mito blogs.


These Mito blogs helped me tremendously when we found the depletion on Abby's biopsy. I like so many really had no clue what Mito was, and honestly, I still struggle to try to categorize all the variables.


I know I have said it a hundred times, but we are the lucky ones. Abby doesn't deal with seizures, infections, tubes.. Abby's mind is not affected by Mito. Abby walks, can eat, can hear, can see.


Often because of how well Abby is compared to many other mito patients it is easy to forget that Mito kills. Maybe I purposefully chose not to think about it. I have to admit, when Abby was having such a time of it this winter, the thought crossed my mind that I could lose Abby- and I ran from that thought as quickly as I could. I have absolute faith that Abby can and will live a normal lifespan- and many with Mito do. It is incredibly difficult to read about the loss of children and adults because of Mito, and just as hard to talk about it.

Halaynas Hope blog posted yesterday- 3 mito patients died. It was one of those slap in the face moments. The feelings her post dragged out of me were complex. I immediately felt lucky, then scared, then ached to take away some of the pain these families are suffering- I feel hopeless to do anything.

As we as a community wait for treatments, improvement in therapies, new genetic testing, stem cell replacements,organ transplants, we are losing many along the way. These precious children, teens and adults we lose are our hero's. Through them and their journey medicine has learned more.. their Drs. have learned more about Mito, their families,friends and communities. Through them and their journey's they have given the rest of us a better chance to win and fight this disease process.

My heart and prayers go out to all these families who have lost their loved ones.

Wednesday, June 6, 2012

Circles-






Over the past year I have stretched our search to find information to help Abby to include groups that I never thought 5 years ago either existed or could possibly be connected.


Mito, autism,biomed,holistic,mast,PEG,nutrition,IBS,essential tremors,vaccines,GMO,migraine,methylation,MTHFR,allergies...

The most interesting part of finding these groups is that I run into the same folks- this circle of diseases and paths includes many of us.

How are they connected? Are they connected? Are we just chasing our tails?


Even if none of this proves any type of connections- I have learned. Abby has improved. I have found incredible Mom's and Dad's who won't take "no cure" for an answer. These amazing people I run into again and again on the same quest we are on keep me motivated- keep me learning and at the end of the day, have helped make my family so much healthier emotionally and physically.


There are days where I wonder "What the heck am I doing?" I am no Doctor and this meddling is probably not a great idea. Then I think back at how sick she was when I was doing what the Drs. said.. how could I not meddle? Her improvements were so quick once clear of the supplementals, peg, allergies- yet, no Dr. believed that could be the cause of increased misery. That the interventions were actually causing more harm then good.

I haven't found a cure. I don't understand genetics or metabolic systems- but I know my daughter. The improvements are coming much slower now and I find myself getting impatient when she has a bad day. Yet, there are improvements still happening. She is moving around so much more. Her sleep is better. She is now healthy enough to recognize when it was a food that made her sick. I cannot cure her but I can help her feel the best she can considering..

The Drs we trust with Abby "see" what I have seen. They watch Abby closely for the medical issues that they can help her with without hurting her. They listen. They help me steer the boat in right direction. They point out various "holes" in her nutrition and help me fill them. They understand that we aren't comfortable with the standard mito protocol- and support us. They ignore the zebra that we cannot make go away, and help me rein in all the horses.

If I just chased the Mito, I would indeed be chasing my tail with Abby. But, if I can keep my eye on those horses and keep herding them up I think we are continuing to move forward.




Sunday, June 3, 2012

Mini PB2/Chocolate Shirataki Muffins!




I really wanted to figure out how to make a peanut butter cookie with my new PB2(45 calories per 2 Tablespoons! Find out more here) but, they turned out tasty but so soft,too soft! Just did not fill my need for a crunchy,chewy or crisp peanut butter cookie.. I am not one to waste an experience and quickly figured my "peanut butter cookie" would make a better muffin!


These really turned out delicious! They reminded me a little bit of the tenderness in a cream puff.. I added one dark chocolate chip to the top before I threw them in the oven- and the flavor was magical!


PB2-Chocolate mini muffins

Preheat oven to 350.

2 bags of Shirataki traditional noodles(or miracle noodles or zero calorie brand of your choice)
3 egg whites
5 Tablespoons PB2 still in powder form.
2 Tablespoons C&H Sugar and Stevia blend
1 teaspoon baking powder
1/2 teaspoon vanilla
1/4 teaspoon salt(more or less to your taste)
a handful of dark chocolate chips or semi- or you could use a raisin, a peanut? Whatever you would prefer.

Prepare your shirataki noodles as shown in the 10 calorie chocolate cookie recipe(find it here!)

Add the rest of the ingredients to your shirataki paste and blend well.

If for some reason, you did not get your shirataki noodles dry enough and your final product looks more watery then a thick pudding you can add either another tablespoon of PB2 or a teaspoon or two of powdered nofat coffee creamer. If you have dried egg white powder on hand that would work too.

I lined my mini muffin tin and each cup took approximately 1 teaspoon of batter- you will want to fill your paper better then 3/4 full as though these rise, they don't rise much. Place your dark chocolate chip and place on top and press down a bit.



Bake at 350 for 35 minutes. This recipe made 24 mini muffins. The only thing I might change would be to grease the muffin tins with Pam instead of the paper liners- the muffins seemed to stick pretty badly to my paper liners. Even then, I did not mind eating the crumbs off my liner to eat every last crumb! :-)





Skip the Soy!




I was reading one of my yahoo groups this morning and a member posted this information on Soy- I happen to agree wholeheartedly and figured I ought to share here- Soy is one of Abby's allergies, and removing even the smallest particles of soy from her diet has contributed to her recent improvements in health. It is my understanding that ONLY fermented NON GMO soy is healthy for us.


This "Miracle Health Food" Has Been Linked to Brain Damage and Breast Cancer


What Makes Soy Such a Risky Food to Eat?

Here is a summary of soy’s most glaring problems.

91 percent of soy grown in the US is genetically modified (GM). The genetic modification is done to impart resistance to the toxic herbicide Roundup. While this is meant to increase farming efficiency and provide you with less expensive soy, the downside is that your soy is loaded with this toxic pesticide. The plants also contain genes from bacteria that produce a protein that has never been part of the human food supply.
GM soy has been linked to an increase in allergies. Disturbingly, the only published human feeding study on GM foods ever conducted verified that the gene inserted into GM soy transfers into the DNA of our gut bacteria and continues to function. This means that years after you stop eating GM soy, you may still have a potentially allergenic protein continuously being produced in your intestines.

Even more frightening is the potential for GM soy to cause infertility in future generations, which has been evidenced by recent Russian research.

Soy contains natural toxins known as “anti-nutrients.”
Soy foods contain anti-nutritional factors such as saponins, soyatoxin, phytates, protease inhibitors, oxalates, goitrogens and estrogens. Some of these factors interfere with the enzymes you need to digest protein. While a small amount of anti-nutrients would not likely cause a problem, the amount of soy that many Americans are now eating is extremely high.

Soy contains hemagglutinin.
Hemagglutinin is a clot-promoting substance that causes your red blood cells to clump together. These clumped cells are unable to properly absorb and distribute oxygen to your tissues.

Soy contains goitrogens
Goitrogens are substances that block the synthesis of thyroid hormones and interfere with iodine metabolism, thereby interfering with your thyroid function.

Soy contains phytates.
Phytates (phytic acid) bind to metal ions, preventing the absorption of certain minerals, including calcium, magnesium, iron, and zinc -- all of which are co-factors for optimal biochemistry in your body. This is particularly problematic for vegetarians, because eating meat reduces the mineral-blocking effects of these phytates (so it is helpful—if you do eat soy—to also eat meat).

Soy is loaded with the isoflavones genistein and daidzein
Isoflavones are a type of phytoestrogen, which is a plant compound resembling human estrogen. These compounds mimic and sometimes block the hormone estrogen, and have been found to have adverse effects on various human tissues. Soy phytoestrogens are known to disrupt endocrine function, may cause infertility, and may promote breast cancer in women.

Drinking even two glasses of soymilk daily for one month provides enough of these compounds to alter your menstrual cycle. Although the FDA regulates estrogen-containing products, no warnings exist on soy.

Soy has toxic levels of aluminum and manganese
Soybeans are processed (by acid washing) in aluminum tanks, which can leach high levels of aluminum into the final soy product. Soy formula has up to 80 times higher manganese than is found in human breast milk.

Soy infant formula puts your baby’s health at risk.
Nearly 20 percent of U.S. infants are now fed soy formula, but the estrogens in soy can irreversibly harm your baby’s sexual development and reproductive health. Infants fed soy formula take in an estimated five birth control pills’ worth of estrogen every day.

Infants fed soy formula have up to 20,000 times the amount of estrogen in circulation as those fed other formulas!

There is also the issue of pesticides and genetic modification.

Soy foods are both heavily sprayed with pesticides and genetically modified (GM). More than 80 percent of the soy grown in the United States is GM. And more than 90 percent of American soy crops are GM.

Since the introduction of GM foods in 1996, we’ve had an upsurge in low birth weight babies, infertility, and other problems in the U.S. population, and animal studies thus far have shown devastating effects from consuming GM soy.

You may want to steer clear of soy products for no other reason than a commitment to avoiding GM foods... unless you wish to be a lab animal for this massive uncontrolled experiment by the biotech industry.

What Soy Products are Good For You?

I want to be clear that I am not opposed to all soy. Soy can be incredibly healthful, but ONLY if it is organic and properly fermented.

After a long fermentation process, the phytate and “anti-nutrient” levels of soybeans are reduced, and their beneficial properties become available to your digestive system.

You may have heard that Japanese people live longer and have lower rates of cancer than Americans because they eat so much soy—but it’s primarily fermented soy that they consume, and it’s always been that way.

Fermented soy products are the only ones I recommend consuming.

These are the primary fermented soy products you’ll find:

Tempeh a fermented soybean cake with a firm texture and nutty, mushroom-like flavor.
Miso, a fermented soybean paste with a salty, buttery texture (commonly used in miso soup).
Natto, fermented soybeans with a sticky texture and strong, cheese-like flavor.
Soy sauce, which is traditionally made by fermenting soybeans, salt and enzymes; be wary because many varieties on the market today are made artificially using a chemical process.
Please note that tofu is NOT on this list. Tofu is not fermented, so is not among the soy foods I recommend.

Vitamin K2: One of the Major Benefits of Fermented Soy...

Interesting read? Thinking there is no way you can live without soy sauce? Try Coconut Secrets Amino's. If you continue to use Soy Sauce research your brands. There are some options that are better then others.

Friday, June 1, 2012

Allergy Attack





Abby ate some frozen banana ice cream(just banana,you freeze and puree the banana) with PB2- within 30 minutes became violently ill.

Headache,nausea,wheezing, drop in BP, then heart racing, muscle cramps, wobbly legs, the whole 9 yards.


What did we learn from this? Either the banana's were a terrible idea(she has only had oral allergy in the past and did fine with some cooked the other day)or despite the PB2 listing only peanuts,salt, and sugar they may be contaminated either or all soy,dairy and or corn- Or she is allergic to peanuts?


However, as usual, there is a bright side to this awful attack. Within 30 minutes everything she had struggled with this winter that everyone was certain was due to the progression of the mito had reappeared. Which confirms that it wasn't Mito this year, but allergies.


Even her proteinuria shot through the roof after a few days of under 100.


It was bound to happen. As we try new foods, or questionable foods this could happen again. Abby said despite the absolute misery, that it was sooo clear after having a really good day that all that she has been suffering with this year, either was allergies or triggered by allergies. Now that she has been clean she said it was so obvious that it was allergies.



The depletion is there as is her myopathy- eliminating allergens isn't going to make that go away, but it sure made a whole slew of very scary symptoms go away.

She hasn't even had a dysautonomia or POTS flare in 4 weeks- the longest she has gone in 3 years. Of course, after the allergy flare last night the POTS symptoms were already back..


This weekend is going to be some seriously blah food for Abby, and after last night-she said she will be grateful indeed for boring and safe foods.


 
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