Wednesday, September 4, 2013
Until I saw the RASH.
Yep, on day 7 around the injection sites she got a rash. Not when she was injected, not even the next day- took till day 7. Delayed? Who knows. A bruise in the center, a clear ring and then a crimson ring of pinprick rash spreading across in a circle around the injection. She also is in hive mode. Itchy- from her head to her toes she is itchy. Brushing her hair and the itches are soothed for a second but the act of brushing backfires and the relief is temporary and the itching gets worse.. Her whole body is itchy.. where her clothes touch no matter the fabric- Itchy! She actually flushed today, which I cannot remember happening.. Today, the rash is still there, about the same, but now the center is a hard knot?? I am not even trying to guess what that is about.
Kidneys ache, reduced urine.. and did I say ITCHY???
On one hand, it is a huge relief to see her feeling like one of the living again.. seeing her so run down and miserable for a week was causing us to really rethink our decision to move forward with the IVIg(long story, but turns out she was given the wrong dose). Plus, after seeing her get so sick and her body managed just fine to recover, well that felt like a victory, like "well, maybe she is tougher then we thought."
On the other hand, rashes have never been "mild" with Abby. She rashes when something is bad, really bad. It usually indicates her reactions have reached a new level of sensitivity- how she could get anymore sensitive is beyond me, but we have learned to expect the impossible when it comes to Abby.
So, despite clearly feeling better and pushing back toward pre IVIG Sub Q baseline, I am not ready to do our victory dance quite yet that she has bounced back.. I am suspicious and with good reason. Abby's body likes to keep us guessing.
Hoping this rash and itching is transient.. a "no big deal" and "means nothing." Or maybe it means something "good" for once? So I hope. I cannot remember one time yet that a rash meant nothing with Abby, but I can hope! We are ready to have a 1st around here. :-)
At this point though I am claiming victory on her gut. Our precautions of restricting her diet to only a very very safe diet after any stress, illness or trauma, is paying off. Preventative care works, at least with Abby's GI tract. Which means I can start whipping up some funky food this week.. in moderation of course, but it will feel more normal around here with me back in the kitchen doing what I enjoy most.
I am still holding my breath, but hoping the rash is a normal thing for once.. maybe a rash could be a good thing. At least she feels better and overall is headed in the right direction. No reason not to be optimistic.
Posted by Diane at 8:27 AM