After a few months of building symptoms, we finally hunted down the guilty party- it was the brown rice.
It still just floors me to think that something like a brown rice that at first was fine has the potential to turn her body into a war zone.
Fatigue,racing heart, muscle and joint pain, GI issues,BP issues, kidney proteinuria, dizzy, wobbly legs,bladder issues(and more!)- all triggered by 1 particular brand of rice. (Her weird rash is still everywhere and not improving, but hopefully a couple weeks her body will balance back out)
Can 1 very small thing like the wrong rice cause her to be that sick, cause anyone to be that sick? Yep. It sure can.
It took me 2 weeks of weeding out ingredients aggressively to hunt it down.. Really it was more gut instinct for both of us.
After reacting to so many foods in such odd ways(mimics symptoms of all sorts of health issues) you start to develop a 6th sense as to which one might be dangerous.
I remember buying the brown rice, not the normal brand(First Warning). When I went to grind it I thought it smelled different(Second Warning) and even though rice depending on brand and the type has different smells(it really does) there was something that caught my attention. That six sense was trying to warn me and I ignored it.
Last time I ground it a couple weeks ago we had finally decided that something was filling her bucket.. but what? As I ground the last of the brown rice I had that creepy crawly feeling that just maybe it was the rice(Third Warning).. and despite years of watching her react to the most insane minimal amounts of contaminates(what a food was grown in, what part of the country it was grown, what they rinsed it with etc) I still found myself doubting that six sense even though through experience I KNOW the smallest most minimal change can cause havoc..it is still impossible at times to believe that she is simply that sensitive. It is easier to believe some new disease process has griped her body then to grasp the concept that a few grains of rice are trying to kill her.
When will we ever learn to stop and listen to our "guts?" That six sense has a terrific track record of being right.
It takes awhile to recover from this much flare for her.. but just after a couple days that yellow color is mostly gone from her skin.. she was cheerful yesterday, reduced pain,scalp clearing(reactions cause her scalp to redden,scale and itch) and as relieved as I that we figured it out. Hoping a couple weeks and the kidneys and everything else in her body that short circuited will calm again.
Reactions: Any symptom that mimic's zillions of disorders. Anything, I mean anything from the direction the wind blows to where the rice was grown and how it was packaged can set off and dangerous cascade of symptoms.
Relieved, very relieved. But I cannot help but wonder, how long will it take before we start listening more to that six sense then to what so many Drs. have decided is possible or impossible?