Today at 9:06 AM Christine Cox, Director of Outreach & Advocacy (MitoAction)
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Research Study Opportunity
National Human Genome Research Institute researcher Peter McGuire, M.D. is conducting a study on immune issues in mitochondrial disease and other inborn errors of metabolism. The Metabolism, Infection and Immunity ("MINI") study is ongoing and currently is seeking additional patients with mitochondrial disease to participate.
The NIH is offering seasonal flu vaccines as well as the pneumococcal vaccine to study participants. If a vaccine is received, the participant's response to the vaccine will be measured and shared with the participant or his/her family. Please note that receipt of vaccines is not required for participation in the MINI study.
MitoAction has received the following information about the MINI Study from the NIH:
Overview of the MINI study
Letter about the MINI study and mitochondrial disorders
Information about flu season for patients with mitochondrial disorders and inborn errors of metabolism
To be eligible, participants must:
Be at least 2 years of age
Have a diagnosis of a Mitochondrial Disorder
Be able to travel to the NIH Clinical Center in Bethesda, Maryland
For additional information about the MINI Study, please visit http://www.genome.gov/mini/
Granted, it is pointed out that you don't have to have the vaccine to participate....
Still, if you are like me, the last thing you want to hear again and again and again and again and again... is "Flu Shot".
Commercials, sitcom's, government announcements, schools, pharmacies, it is insane.
On the other hand, there are plenty out there that feel the potential protection for a few age populations makes injecting this shot worth the risks. So maybe these type of emails from patient support non-profits make them feel better about the choice they make to buy these.
On a positive, America is waking up and more and more folks are taking the time to read and assess whether the "possible' protection gains from these are worth the scary risks.
Vitamin D(way safer then flu shots), hand washing(safest!), good rest( great idea for all diseases)and improved nutrition (excellent choice) are the safest options in flu prevention and not only help protect you from the flu, but also help keep your body far happier and healthier.