WARNING: the foods we cook for Abby are safe for her, but not necessarily for everyone. Please confirm any ingredients are safe for you before using in your diet. Food Allergies can kill and the best policy is complete avoidance. Read this post for more info.

Friday, February 12, 2016

Medications Abby takes for Mitochondrial Disease

I often see patients posting their boxes and baskets of medications/supplements/vitamins to help folks understand the cost/extend of medical intervention it takes for them to manage their disease.

Mito though is about snowflakes.

No two patients are the same.

In Abby's case this is a picture of her medication.

It isn't a cure, and while she has shown a couple mild improvements what this "medicine" has done is give her a lot more stability. The rapid progression we were watching has slowed to a trickle.

We know the medicines and vitamins weren't good for her particular case of Mito, but it seems something a lot more natural is helping her like the medicines and vitamins help others.

Might be mast involvement, or allergies, or something else entirely, but it works.

So, if you are diagnosed with Mito and panic when you see those mountains of meds so many patients need, take heart, even some pretty sick patients like Abby don't need them and in fact do better without them, at least at this point in her disease process.

We keep in mind that medications and other toxins cause mitochondrial damage when we are searching for foods for Abby. The garden is growing wonderful carrots,parsley and more. The chickens are giving us so many eggs! They eat a diet of free range and a corn free and soy free supplemental food. Ginger, coconut oil, turmeric and chickpeas are essential for her.

You might need all those meds, or maybe you will be a snowflake that doesn't.

More meds doesn't always indicate "more sick" nor does "less meds" always indicate less sick.

Mito is the most complex and individual group of diseases out there.

Listen to your gut when tailoring your healthcare to your bodies needs.

Friday, February 5, 2016

Remember that Wonder( Mill ) Mix stand mixer I bought? Worse then I thought.

Well, I tried to sell it on craigslist- and no takers!

So when we moved I packed it up and brought it with us since I hated the thought of throwing away the money.

My oldest Sara wanted to make bread(she makes wheat) and I told she ought to try it.

Worked well enough for a soft sweet bread recipe. She used 2 times.

She decided to make the french bread today and noticed the plastic parts were wearing and dinged and found chips of plastic in her bread.

So, probably the worst purchase we have made and it hits the trash today. I will take some pictures before I trash it so anyone else with one can see where it will wear so they can carefully check their parts.

Stick to the Kitchen Aid folks!

Though I still stand by their WonderMill- it grinds everything with no problems at all.

(sorry, not the best pic but was so annoyed I just wanted to hurry up and toss it! )

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